Alex's Journey with ALS
Henderson, W. (2018). Alex Coriell's Journey
With ALS. Retrieved from
https://alsnewstoday.com/2018/02/01/alex-coriells-journey-with-als/?utm_source=ALSNews&utm_campaign=856209f0b7-RSS_FRIDAY_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_0593028b75-856209f0b7-71721017
In this video, Alex is a 29 year-old husband and father. He was diagnosed with ALS in January of 2013. This video shows the progression of the disease and how he lost his ability to swallow, speak, walk, use his hands, and more. Alex's wife was his caregiver. She bathed him, fed him, clothed him, cooked for him, and supported him with such a loving attitude. As life for Alex became more of a challenge, he and his family did a wonderful job using technology to their advantage. When Alex could no longer speak, he had a device that could articulate for him. When he could no longer type with his fingers because of the pain, to post on his blog, they chose to have an IPAD/ tablet elevated to his level so he could type with his nose. When he could no longer type with his nose, he was able to control his keyboard using his eyes. Furthermore, Alex also had a power wheelchair that helped him get around both inside and outside their home.
Alex continued moving as much as possible when he still could. He walked with a cane, he lifted light weights, and he still did some of his ADLs (activities of daily living) such as shaving and brushing his teeth. Alex also made sure to still spend time with his children. Several times in the video, it showed Alex watching football with his boys, playing out in the yard, or spinning them around in his chair. He truly had a heart made for perseverance.
I chose to do this assignment on this video because we have just recently discussed ALS in class, and I thought it would not only help further my learning on the specific disease, but also give me insight into a real life situation for someone with ALS. I furthered my learning of this topic by using the knowledge I gained from the discussion we had in class, along with the notes I took on the topic, and it definitely helped put everything into perspective and helped further my understanding.
I have learned that ALS can also be referred to as Lou Gehrig's Disease. Furthermore, this disease causes a deterioration of the muscles to the point to which the person cannot move. It can affect swallowing which results in a G-tube, and I got to see a small portion of this video showing us how that worked. I also got to see a significant amount of footage of the care-takers role in someone with ALS, which can further my understanding of how to educate the caregivers if I ever have a client with this disease. This video not only educated people on the facts of ALS, it also educated them on how a positive attitude can be of assistance when life doesn't go as expected. Alex had a wonderful heart and he never gave up regardless of what his body was preventing him from doing. Instead of giving up, he found a new way around the obstacles and challenges, and as an OT student, this was very interesting and inspiring to see. OTs are always adapting and looking for new ways to accomplish tasks that bring joy and fulfillment to the lives of other people. I loved how he was still able to paint with just a touch of modification, and he painted something that was important and meaningful to him.
I encourage anyone and everyone to watch this video. It is so unique, empowering, and vulnerable. I commend Alex for sharing his story, and reaching out to help others. This video was a great learning experience for individuals wanting to learn about ALS or to see how a positive attitude can go a long way!
https://alsnewstoday.com/2018/02/01/alex-coriells-journey-with-als/?utm_source=ALS+News&utm_campaign=856209f0b7-RSS_FRIDAY_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_0593028b75-856209f0b7-71721017